Neurofibromatosis Northeast


Categories
Non-Profit Organization
About Us
Neurofibromatosis Northeast is a non-profit organization incorporated in 1988 by a group of people who were in some way affected by the genetic disorder known as neurofibromatosis (NF). Our mission is to promote research, awareness and advocacy.
Events

Hats, Horses and Hope
- A Kentucky Derby party in support of Neurofibromatosis Northeast.
- Saturday May 6, 2023

Steps2Cure NF Walk & Road Race
- Walk/run to benefit Neurofibromatosis Northeast on Saturday, May 13, 2023 at Lake Quannapowitt in Wakefield, MA.
- Saturday May 13, 2023
Rep/Contact Info

View Personal Bio
Christi Shannon
I am a Burlington resident, married 15 years to my husband, David, and mother to three very active boys! It is very exciting to be working again, outside of the home, after working remotely for many years while my boys were young. Being a part of Neurofibromatosis NE, an organization who supports and advocates for individuals and families impacted by the disease, makes me very proud! I look forward to meeting other members of the chamber to share more about NFNE and our mission, and also to learn more about each of you!